Remembering Michaela Noam

Remembering Michaela Noam

Our oldest daughter, Michaela Noam, was a lively, intelligent, beautiful child who has cerebral palsy. She was thriving despite her physical limitations, and she elevated our existence and gave purpose to our lives. She unexpectedly passed away on May 23, 2009 at age 5 and a half, leaving behind not only her devastated parents, but also two younger sisters.

I had been a devoted special needs mother. I have not returned to writing and much of my non-fiction work — essays, memoir — has been published. It all has to do with Michaela. As well, I continue to fiercely advocate on behalf of the special needs population. You can follow me on Twitter @gabriellaburman.

This is a photo of our gorgeous, beloved, delightful Michaela, age 5.
MichaelaKaplanphoto

 

 

 

Submitted by Gabriella Burman in loving memory of her daughter, Michaela Noam Kaplan.

Everyone Grieves Differently

Everyone Grieves Differently

In the months after my daughter’s death in 2009, I struggled with the notion that others around me didn’t appear to be grieving the “right way.”

Initially, I was frustrated that for the most part, my husband and other children didn’t openly cry or talk about her death the same way I did.

Occasionally, I felt outright angry that they appeared to be knowingly suppressing their pain, or showing signs of depression while refusing my urges for them to go to grief counseling. Despite no spoken requests from them, I took cues from their silence and felt compelled to tone down my own feelings of despair around my family. It made me feel isolated in the place where I thought I should be getting the most support – at home.

Not getting the specific type of support I wanted at home, I desperately looked for it in other places. I read book after book about death and grief. So driven to talk about my daughter’s death and the devastation it brought, I went to grief counselors and support groups. Talking about my unbearable pain seemed to me the only way to survive it.

But even in those settings – while there were many similarities in how we grieved – I still found myself frustrated at the numerous differences.

It seemed the experience of losing a child was different than losing a parent, spouse, or other cherished loved one. But even when I was around other bereaved parents, there were other differences. They included the age of the child when they died, the circumstance of their death, the support systems each person had in place, or the length of time since their child had died.

While I appreciated the opportunity to find some solace in telling my story to all these people, I ended up comparing their grief to my own.

In the beginning, I was doing it to try to figure out the “right” way to grieve; the way that would somehow alleviate my intense suffering. Talking helped, but nobody shared my exact situation. Therefore, no one shared all the same combination of struggles as me. It made me frustrated.

Later in my grief, if I saw where others struggled in areas I seemed to have a handle on, I offered advice. Just like the situation with my immediate family in the early months, I thought I knew what was best for these people. When they wouldn’t follow my advice – despite it being offered in the best of intentions – I found myself frustrated again.

The problem with this approach is that it can unintentionally imply that there is a “wrong” and a “right” way to grieve. But there isn’t.

I can pinpoint the moment when this all became perfectly clear to me. It was while attending a Compassionate Friends conference. During a session, the speaker talked about her own experience of losing her son, and how she grieved differently than both her husband and other son. She discussed studies that showed the typical ways fathers, mothers, and siblings grieve the death of a child (no matter their age). It all confirmed my own experiences.

But then she said something I’d never thought of before. She suggested the main reason we grieve differently – even in the case of a family grieving the same loved one – is because we are not grieving the person. Rather, we are grieving our relationship with that person.

Every relationship is unique. So too is our reaction to losing that relationship. In this example, a father’s relationship with his child is fundamentally different than that of a mother’s relationship with that same child. And neither the mother nor the father can truly understand the relationship their surviving child(ren) had with that same child. You can apply this concept to any family member or friend.

So even if my earlier attempts to find someone who had experienced a loss in the exact same set of circumstances as me had worked, I still wouldn’t have found the solace I was looking for. Even if our circumstances were somehow the same, our relationships with our loved one could never be the same. Therefore, our grief wouldn’t be either.

Ultimately, I’m left with the understanding that what works for me, works for me. It may or may not work for others.

My way of grieving is not “right” and different ways are not “wrong.”

While I still may be tempted to offer advice to others, I have learned not to judge if they don’t take it. My hope still remains that everyone faced with a devastating loss will somehow find their way through it with the support and understanding they need.

If I Only Had a Brain

If I Only Had a Brain

Ever since she was born, I sang songs to my daughter, Margareta. I had my short list of favorites, and would sing them usually to get her settled down to sleep, but over time I would sing to her throughout the day whenever the moment struck me. I even added my own lyrics to the french song “Alouette” that I had learned as a child to make a song about how much I loved her.

As soon as she could talk, Margareta loved to sing herself. She had a knack for memorizing lyrics, even at the tender ages of two and three. In the car, we would sing songs together, and the second a song was over she would ask for me to sing another one. She did this so often, I even came up with a song called “One more song, Mama”.

Margareta’s older brother, Andrew, also loves to sing. He too had started singing from a very young age. Starting in third grade, Andrew began performing in musicals – either through summer camps or at school. As a result, he would be practicing his songs at home and Margareta would do her best to learn them as well. Because she couldn’t read, this meant just listening to him sing over and over and memorizing what she heard. It led to some funny interpretations sometimes.

The songs she learned from her brother that stick out in my memory are “Iowa Stubborn” and “Gary, Indiana” from The Music Man, and later on “If I Only Had a Brain” from the Wizard of Oz. Of course, she only learned parts of the songs, but the parts she sang, she sang with purpose and gusto – as if she were going to be up on that stage herself.

The song she learned from her brother the best was “If I Only Had a Brain”. She memorized three quarters of the song and sang it over and over again. In perfect pitch, I might add. It became her favorite song. We often talked of Margareta and Andrew ending up singing in a band together. A dream that can never come true.

Andrew sang “If I Only Had a Brain” for his sister at her memorial service with tears in his eyes. It will now forever be the song that reminds me of my little girl who loved to sing.

Submitted by Maria Kubitz in loving memory of her daughter, Margareta.

Sister Trouble

Sister Trouble

When i was 6, my other sister was 4 and Madison was 2. So, Julia (the 4 year old) was being mean to me. So i threw a toy at her. She started crying and calling “Daddy! Mommy!” I took Madison with me and ran down the basement. I said to Madison, “Go upstairs and hit Julia with a book!.” Madison was confused.

“Why Shannon?” She asked. “Because, Julia is always mean to you. Don’t you want to get her back for it?”

Madison nodded. Got a book, went upstairs and started slapping it at Julia. Now of course a 2 year old can’t hit hard, but Julia just assumed it would have. Again Julia started yelling, “Daddy, Mommy!” While trying to grab the book away from Madison and hit her with it.

Finally my Dad came out and started yelling at Madison. She had no clue what was happening.

I felt so bad i started bursting into tears! “No daddy it was me! All me! I told Madison to hit Julia with the book.”

Madison hugged me and said “It’s okay Shannon, don’t cry.”

So my Dad understood and started yelling at me. And that was the end of that day!

Madison was always trying to make everyone else feel better and I miss her.
Submitted by Shannon Ritts in memory of her sister Madison Ritts