Remembering Michaela Noam

Remembering Michaela Noam

Our oldest daughter, Michaela Noam, was a lively, intelligent, beautiful child who has cerebral palsy. She was thriving despite her physical limitations, and she elevated our existence and gave purpose to our lives. She unexpectedly passed away on May 23, 2009 at age 5 and a half, leaving behind not only her devastated parents, but also two younger sisters.

I had been a devoted special needs mother. I have not returned to writing and much of my non-fiction work — essays, memoir — has been published. It all has to do with Michaela. As well, I continue to fiercely advocate on behalf of the special needs population. You can follow me on Twitter @gabriellaburman.

This is a photo of our gorgeous, beloved, delightful Michaela, age 5.
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Submitted by Gabriella Burman in loving memory of her daughter, Michaela Noam Kaplan.

He Was My Everything

He Was My Everything

Hi,

I lost my husband to lung cancer just two months ago. On 22nd Jan at 3.30 am. He battled with the disease for 3 years. We were married for 7 years. And together for a total of 15. Everything I know and have learnt, is from him. He was my best friend, my boy friend, my husband, my father, mother, my sister and my brother.

Losing him slowly, everyday to the disease was painful, but nothing had prepared me for losing him to death. We were prepared for the inevitable, but nothing can prepare you to live through the inevitable without your partner, who you prepared with… I miss him very single minute of the day and night.

All my memories are with him, of him and about him. From learning to e-mail, or to use the computer properly, way back in 1998. To learning to drive, traveling to different countries, eating all kinds of food. Everything.

All my conversations were always about my experiences with him and about him and us, our life, our love story, our stories. Period. Now I can either just speak about him or not at all. I have no words to talk about anything else other than him. It’s almost like I have re-learn everything, from social graces, to conversation topics, to living my life on my own. Restarting my career. Everything. And every place I visit and re-visit, for real and in my head, it’s all with him.

It’s a process I know, it don’t have an end, and neither does it have a set pattern or map that I can follow. And it is my journey and only mine, alone. I’ve never really done anything without him. But it is nevertheless, my only option. Taking it a day at a time. The only and only philosophy that has helped me so far.

May everyone find their peace, in this journey in some way or the other.

Purva

Submitted by Purva Verma Khanna in loving memory of her husband, Sachin Khanna.

I Remember You

I Remember You

I remember you arrived in the aftermath
of hurricane Katrina
You turned my world upside-down
but in the best way possible

I remember you sleeping peacefully
surrounded by many stuffed animals
who would later become
your treasured playmates

I remember your smiles and laughter
intermixed with a quiet seriousness
as if you were contemplating
the mysteries of the universe

I remember how excited I was
when your hair was long enough to put in pigtails and braids
and how you pulled them out
because you preferred your hair free and messy

I remember the many pretty dresses
you loved to wear
and how they showed off your scrapes and bruises
from playing rough and keeping up with the big boys

I remember you asking me to sleep with you
pulling me as close as you could
face to face and noses touching
giving each other eskimo kisses

I remember your intelligence and confidence
as you started to navigate your own way
through this confusing world
and how I wished I could be more like you

I remember the joy
I remember the love
I remember you
every day and
with every breath

Submitted by Maria Kubitz in loving memory of her daughter, Margareta.

Feeling Guilt After the Loss of a Loved One

Feeling Guilt After the Loss of a Loved One

Guilt is a powerful emotion.

For me, it’s a combination of various feelings: sadness, regret, embarrassment, shame, incompetence, failure. The list goes on. No matter what feelings go into forming it, the result is always the same: blame. Whether we deserve it or not, guilt sets in when we blame ourselves for something we think we did wrong or wish we could have done better.

For many who have lost someone dear to them, guilt often creeps in almost immediately.

We feel guilty when we didn’t say everything we should have or didn’t spend enough time with them while they were here. In situations where we make choices for their care or medical treatment, we guiltily question whether we made the choice they would have wanted. Some feel guilty that they didn’t fight hard enough to keep them alive. Others blame themselves for not seeing the warning signs early enough.

In some situations, guilt after a loss is more complicated and often unwarranted. The loss of a child often brings misplaced guilt. Parents feel a responsibility for taking care of and protecting their children. Even when their children are grown.

I’ve heard bereaved parents blame themselves for just about any type of death at any age.

A parent whose young child died of cancer blamed themselves for not seeing the symptoms soon enough. They even felt guilty for passing along the gene that caused the cancer.

A college-age child died in a spring break car crash when his friend fell asleep at the wheel. His father blamed himself for not stopping his son from going on vacation in the first place.

The parent of an adult addicted to drugs blamed themselves for not doing enough to help their child overcome their addiction. As if it were in their power to do so.

The stories go on and on.

In some cases, guilt is expected (and some may even believe deserved). These are the “preventable” deaths.

My daughter’s death was one of these preventable deaths; she drowned. Not only did she drown, she drowned in our backyard pool while we were at home.

It is still hard for me to say that. I spent hours pouring over every detail of what happened that day. I could tell you until I am blue in the face that her death was a complete accident. Had I known what was going to happen, I would have gladly traded my life for hers.

But the fact is that many who hear that a four-year-old girl was near an uncovered pool alone – no matter for how short a time – will lay blame upon me for not being with her or taking steps to prevent it. And I cannot argue with them.

My deep guilt magnified the despair I felt after she died.

It made me feel like a complete failure as a mother, and even as a human being. Feelings of guilt led me to thoughts of suicide, which I thankfully never came close to acting on.

I was ashamed to tell anyone how she died and chose my words carefully to avoid having to disclose the reason. Saying, “She passed away” or “We lost our daughter,” seemed the most acceptable description. “She died,” or, “She died in a tragic accident,” were the most likely to lead to the dreaded response, “Oh I’m sorry. May I ask how?”

I spent years in counseling and support groups working through my grief and guilt. They told me over and over that it was a terrible, tragic accident and that I shouldn’t feel guilty. I’ve heard all the reasons why it was an accident, and how it could have happened to anyone. And often does. The sad fact is that drowning is the leading cause of death for children under the age of five. I listened and nodded in understanding.

But deep down, the guilt remained.

While I cannot say that my guilt over my daughter’s death is completely gone, it has loosened its grip.

Why? I think it all comes down to choice and perspective.

I read an article describing how humans have an inherent tendency to focus on the negative. Born out of primal survival skills, when we are aware of the danger around us we are better prepared to run from it. As a result, we’re often unconsciously looking at the downside to every situation and anticipating the next potential threat.

The problem arises when tendencies turn into habits. Then long-term habits begin to shape our reality without us even realizing it. But when you hit the proverbial “rock bottom” – in my case, the death of my daughter – and survive it, one of the only ways to go is up.

“Up” for me has been slowly learning a new perspective on life using the lessons I’ve learned the hard way. I began learning how to embrace life and live it to the fullest. I’m continually trying to work on replacing tendencies of negative thinking with conscious choices based on love, truth, compassion, and joy. I’m slowly learning how to stop worrying over the past and future, and focus on what I can control here and now. It has not been easy to try to overcome lifelong habits, but it has been rewarding.

To combat the grief and guilt, I chose to focus less on the circumstances of her death and more on her and how she lived.

I’ve chosen to remember how vibrant, confident, adventurous, and loving she was. I know these qualities are testament not just to her inherent personality, but to the loving, supportive environment we provided for her.

I’ve chosen to acknowledge that it’s unrealistic to think we can keep an eye on our children 24 hours a day. I recognize that for the most part our children DO stay safe; but accidents can happen. I’m confident that I remain, and always have been, a loving mother who adores her children and provides a nurturing environment for them. And I can happily say that I know how much my children love and adore me.

Whether my guilt will ever completely go away remains to be seen.

Until then, I’m going to keep chipping away at it by sharing the unending love I have for my daughter with the world as my witness.

Fun with Coloring

Fun with Coloring

Even from a young age, Margareta could keep herself occupied for long periods of time. Whether playing with toys or using her imagination, she would often just sit intently and concentrate on whatever it was she was doing. I appreciated this time, as it allowed me to get things done, whether it be working from home for my job or doing chores. I remember one particular time when she was 1-1/2 years old that had a funny result.

Margareta was sitting in the living room/dining room combo and occupying herself with a toy, sitting on a chest that had the kids’ art supplies in it. I was busy doing chores nearby. The chest is on the other side of a half wall separating the kitchen and dining room, so I couldn’t see exactly what she was doing, but was close enough to keep an eye and ear on her. After a little while of silence, I checked in on her and found the following:

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Fun-with-Coloring-2

What impressed me the most was how detailed she had been…even getting the bottom of her feet:

Fun-with-Coloring-3

Miss you sweet girl!

Submitted by Maria Kubitz in loving memory of her daughter, Margareta Kubitz.